Edycs Epilepsy Group

Introduction

What We Want to Achieve

Improve the social condition and quality of life of people with epilepsy and those who care for them

How We Will Achieve It

Organisation: Provide an international umbrella organisation for national epilepsy organisations (IBE Chapters) whose primary purpose is to improve the social condition and quality of life of people with epilepsy and those who care for them.

Support: Provide a strong global network to support the development of new Chapters, to support existing Chapters to develop to their fullest potential and to encourage co-operation and contact between Chapters.

Communication: Promote the facts about epilepsy and to communicate IBE’s vision, mission and messages to the widest possible audience.

Education: Increase understanding and knowledge of epilepsy.

Representation: Provide an international and global platform for the representation of epilepsy.

In order to accomplish our objectives of organisation, support, communication, education and representation, IBE:

Promote research into the social aspects of epilepsy

Spread information abo­­­­­ut epilepsy and our work through online platforms, newsletters and reports

Promote effective partnerships between epilepsy organisations

Encourages education on epilepsy through new and innovative training initiatives

Stimulate the formation and continued development of organisations of people with epilepsy and those who care for them in all countries

Help chapters in developing nations to improve life for people with epilepsy in their countries

Organise international and regional conferences, congresses, and other meetings to push forward developments in epilepsy treatment and care

Work in collaboration with the ILAE on activities including the Global Campaign Against Epilepsy and congresses

Work closely with other bodies, such as the World Health Organization, with which IBE has been in official working relations for many years. (Member in Special Consultative Status on the Economic and Social Council of the United Nations (ECOSOC); member of CoNGO – the Conference of Non-Governmental Organisations)